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Our research group aims to explore wellbeing from a socio-cognitive perspective. Using multiple methodologies, we seek to better understand the influences of individual attitudes and beliefs on health related behaviours, the healthcare consultation, and wellbeing. We have particular research interests in behaviour change, stress and coping, long-term conditions, healthcare communication and decision making, and the role of social support networks. We also have expertise in both intervention development and healthcare evaluation.

Healthcare Delivery and Ethics Research Group 2016

Meet our team

Lab Co-ordinator: Janine Caroll, Lecture
Claudine Clucas, Senior Lecturer
Liane Hayes, Senior Lecturer
Brooke Swash, Lecturer
Liz Whelen, Senior Lecturer

Some of our current projects

Living with Neuromuscular Disorders (PI:  Janine Carroll). This project is a longitudinal investigation into the experiences and well-being of people living with neuromuscular conditions and their carers. It uses questionnaires which are distributed over a 12-month period to assess any changes in the psychological well-being of people living with the condition and their carers as neuromuscular conditions are progressive illnesses that currently have no cure. Additionally, qualitative interviews are being conducted to gain an in-depth understanding of the positive and negative experiences those living with neuromuscular conditions and their carers have had since diagnosis. It is hoped that these results will provide a detailed insight into the experiences of this population and feed into the support provided for them and their carers in the treatment and management of a neuromuscular condition.

Evaluation of the support worker role in CAMHS (PI: Dr. Janine Carroll). This is a longitudinal service evaluation looking into the impact of a support worker on service users and case workers in the Child and Adolescent Mental Health Service (CAMHS). The project will follow families, their case worker and their support worker for 18-months during which their usual care will be evaluated to identify how the role of the support worker is perceived by those using the service, what particular activities are useful in facilitating support and what impact the support worker may have a times of crises.  The project is currently finalising ethical approval and recruitment is due to start November/December 2015. The results are expected to contribute to the service by identifying good practice as well as areas for improvement to ensure good quality care is continually provided to service users.

Community Care Pathways at End of Life (CAPE; Local Investigator: Brooke Swash). This multi-method study aims to map care pathways for patients approaching end of life in the community.  The key question is: for whom is home death “good”? Is it possible to identify: a) Those for whom a “good death” at home is achievable, for whom greater effort is needed to optimise home care? b) Those for whom “a good death” at home is rarely achievable, for whom inpatient care should be accepted and planned?  This project uses review of medical records, focus groups with GPs and district nurses, and interviews with bereaved carers and primary care physicians to understand care provision at end of life from a multi-stakeholder perspective.  This research will enable the development of services sensitive to the needs of patients and carers.  Dr. Brooke Swash workes on the project alongside colleagues at the University of Cambridge where the project was conducted. It is funded by NIHR RfPB.

Registered nurses’ experiences of respect towards service users (PI: Claudine Clucas).  This is a qualitative study using an interpretative phenomenological approach to gain an in-depth understanding of registered nurses’ experiences of respect towards and from service users. This research is needed to help support nurses in delivering respectful care in a challenging healthcare environment with increasing service demands and reduced resources, and in receiving respect from patients. Semi-structured interviews have been carried out with 12 nurses currently working in an NHS hospital. Interviews have been transcribed and analysed. The research findings elucidate some of the challenges in respecting patients, particularly at an interpersonal level, and will be used to inform the implementation of strategies to better support nurses and improve patient care.

Recent Publications

Longdon, E., Davis, P., Carroll, J., Billington, J. Kinderman, P. (in press, accepted for publication December 2015). An evalutation of shared reading groups for adults living with dementia: premilinary findings. Journal of Public Mental Health

Clucas, C. (2015). Cancer patients’ respect experiences in relation to perceived communication behaviours from hospital staff: analysis of the 2012–2013 National Cancer Patient Experience Survey. Supportive Care in Cancer. DOI 10.1007/s00520-015-2973-5

Sherr, L., Croome, N., Clucas, C., & Brown, E. (2014).Differential Effects of Single and Double Parental Death on Child Emotional Functioning and Daily Life in South Africa. Child Welfare Journal, 93(1), 149-172.

Carroll, J., Goodair, C., Chaytor, A., Notley, C., Ghodse, H., & Kopelman, P. (2014).  Substance misuse teaching in undergraduate medical education. BMC Medical Education, 14, 34. doi:10.1186/1472-6920-14-34

Notely, C., Goodair, C., Chaytor, A., Carroll, J., Ghodse, H., and Kopelman, P. (2014). Report of the substance misuse in the undergraduate medical curriculum project in England. Drugs: Education, Prevention and Policy, 1, 8. doi:10.3109/09687637.2013.792788

Clucas, C., & Chapman, H. (2014). Respect in final year student nurse-patient encounters – an interpretative phenomenological analysis. Health Psychology and Behavioral Medicine, 2(1). doi:10.1080/21642850.2014.918513

Chapman, H. M., & Clucas, C. (2014). Student nurses' views on respect towards service users—An interpretative phenomenological studyNurse Education Today, 34(3), 474-9. doi:10.1016/j.nedt.2013.05.012.

Billington, J., Carroll, J., Davis, P., Healey, C., and Kinderman, P. (2013) A literature-based intervention for older people living with dementia, Perspectives in Public Health, 133, 3, 165-173. doi: 10.1177/1757913912470052  

Sherr, L., Solheim Skar, A., Clucas, C., von Tetzchner, S., & Hundeide, K. (2013). Evaluation of the International Child Development Programme (ICDP) as a Community-wide Parenting Programme. European Journal of Developmental Psychology, 1-17. doi: 10.1080/17405629.2013.793597

Pearson, E., Carroll, J., and Dornan, T. (2013). How do you make doctors? In Farnsworth, V., and Solomon, Y (Eds) Reframing Educational Research: Resisting the ‘what works’ agenda (pp. 50-60). London, United Kingdom: Routledge.

Clucas, C., Karira, J., & St Claire, L. (2012). Respect for a young male with and without a hearing aid: A reversal of the “hearing aid effect” in medical and non-medical students? International Journal of Audiology, 51:10, 739-45, doi:10.3109/14992027.2012.700772.

Harding, R., Clucas, C., Lampe, F.C., Leake Date, H., Fisher, M., Johnson, M., Edwards, S., Anderson, J., & and Sherr, L. (2012). What factors are associated with patient self-reported health status among HIV outpatients? A multi-centre UK study of biomedical and psychosocial factors, AIDS Care: Psychological and Sociomedical Aspects of AIDS/HIV, doi: 10.1080/09540121.2012.668175.

Sherr, L., Clucas, C., Lampe, F., Harding, R., Margaret, J., Fisher, M., Anderson, J., Edwards, S., & switching team (2012). Gender and mental health aspects of living with HIV disease and its longer-term outcomes for UK heterosexual patients. Women and Health, 52:3, 214-233. doi:10.1080/03630242.2012.665431